Caregivers Unite

Thank you for visiting this site.  If you have any questions concerning your journey with someone with Alzheimer’s Disease that is not already addressed in the previous pages, please leave a comment after any post.  I will receive those comments and be able to answer you directly or post some information that you may find helpful or direct you to the answer if I can.

I hope you will communicate with me on a regular basis so we can get a conversation going.  I welcome your experiences, trials, successes and resources.  Don’t be shy, I’m waiting to hear from you.

The Area Agency on Aging is pleased to announce its new dedicated Alzheimer’s helpline.  It provides free, trusted, unbiased information about services available in Mobile, Baldwin and Escambia Counties for individuals and families affected by Alzheimer’s disease and related dementias.  The phone is answered Monday through Friday from 8 a.m. to 5 p.m. on normal business days.  The service is provided in partnership with the Alzheimer’s &  Dementia Coalition of South Alabama.

Rebecca Joosten has the touch of healing in her fingertips.  A nurse for 30 years, she has provided healing massage since 1995.

When nothing else seems to capture the interest of my mom or her fellow residents, I break out in joyful singing.  Even the men join in when I sing one they know.  With the help of a smartphone, the choices are endless, especially if there are requests.

The favorites are as follows:

“I’ve Been Working on the Railroad”

“She’ll Be Coming Around the Mountain”

“Yankee Doodle”

“Dixie Land”

“This Land is Your Land”

“Bicycle Built For Two”

“You Are My Sunshine”

“Star Spangled Banner”

“God Bless America”

“America”

“Grand Old Flag”

“Mine Eyes Have Seen the Glory”

“Taps”

To add to the enjoyment of this activity, we often are sitting around a round table and roll a ball back and forth between us while we sing.

As we all know by now, music is one of the last memories to be lost.  I meet with a small group of residents in a memory care facility and have found that the following songs, scriptures and prayer are remembered by most of the participants.  Whether you are looking for “church service” material or just want to add to the arsenal of activities you can pull out at anytime, the following are tried and true. After sharing the following with the group, one lady said with all sincerity, “Please write those words down for me, they are beautiful.” You can easily find the words online or in a hymnal.

“For God so loved the world, that he gave his only Son, that whoever believes in him should not perish but have eternal life” (John 3:16 ESV).

sing “Blessed Assurance”, “Jesus Loves Me”, and “Nothing But the Blood”.

“Do not let your heart be troubled; believe in God, believe also in Me. In My Father’s house are many dwelling places; if it were not so, I would have told you; for I go to prepare a place for you.  If I go and prepare a place for you, I will come again and receive you to Myself, that where I am, there you may be also.”  (John 14:1-3 Easy to Read Version).

sing “Amazing Grace”.

Recite “The Lord’s Prayer”.

sing “How Great Thou Art” and “In the Garden”.

“Trust in the Lord with all your heart and lean not on your own understanding.  In all your ways acknowledge Him and He will set your path straight.” (Proverbs 3:5-6 NAS).

sing “I’ll Fly Away “and “The Doxology”.

Especially for Easter

sing “He Lives”, “The Old Rugged Cross” and  “Because He Lives”.

Try these tips to prevent wandering out of the house by your loved one.

1. If there is a securely locked high fence around the whole perimeter of the property, let your loved one go outside, in good weather.  Go outside with them.
2. If there is no secure fence or there is other danger to allowing them to go outside at will, try these approaches:
   1. Remove from site triggers that would make the loved one or person with dementia think of going out, such as coats, umbrellas, shoes, purse, etc…
   2. Tell your loved one or person with dementia frequently where they are and why, in a calm tone of voice. Reassure them with words like, “XXX will return in an hour to be with you” or “Your family knows where you are”.
   3. Don’t confront or argue with the person, walk with them and redirect to another part of the house or to an activity. Use humor if possible.
   4. Purchase childproof doorknob covers, or deadbolts to put on the door above the loved one or person with dementia’s eye level, or slide bolts on the top or bottom of the door. These items will never be used when the loved one or person with dementia is alone in the home, only when someone is with them.
   5. If you don’t want to do any of the above, place warning bells above the outside doors, or activate the house alarm system, or get a monitor that goes on the loved one or person with dementia (such as a toddler monitor) or a pressure mat alarm, so at least you know when your loved one or person with dementia has left the house.
   6.  Try putting a full-length mirror on the inside face of the outside door. Sometimes people don’t recognize themselves and think someone is standing there and turn around and go back.
   7. Try putting a black throw rug in front of the outside door. To some people, it looks like a hole in the floor and that they won’t attempt to cross it.
   8. You might try to hide the outside door by putting a curtain in front of it, or maybe by making sure it is the same color as the surrounding walls, that way it may not be seen by the loved one or person with dementia.
   9. Put a big sign on the outside door saying “Stop” or “Do Not Enter” or “Danger- Do not Open”.
   10. Sew ID labels in the loved one or person with dementia’s clothes, or get a special Medic alert bracelet for the loved one or person with dementia, if they have a history of escaping the house. Also they need to have a current picture and a piece of unwashed clothes (for tracking dogs) handy to give to the police, in case the loved one or person with dementia does escape.
   11. If the loved one or person with dementia escapes while you are in the bathroom , grab your cell phone, and run out side, look around the whole block the house is on. Cover the whole block, if not found, call 911 and tell them that a person with dementia has escaped the house and is lost. Try to convince them that this person needs to be found immediately, they need their medicines badly.
   12. If the loved one or person with dementia doesn’t recognize his or her home as where they live, they may want to leave to go “Home”. They may be thinking of a home they lived in previously, such as in their childhood. Instead of telling them that this is their home, talk about the home they are thinking of. Reminiscing about it sometimes lessens their urge to leave.
   13. If they still want to go “home” tell them you will walk with them, and take a walk with them or tell them that you will drive them there, and take them out for a drive. It may help if you stop to get a treat, an ice cream cone, or snack. They probably will have forgotten about the other home by the time you get back, and may even recognize where they live now as home.

By Carole Larkin  MA, CMC, CAEd, DCP, QDCS, EICS is an expert in Alzheimer’s and related Dementias care. She has a Master’s of Applied Gerontology from the University of North Texas, is a Certified Alzheimer’s Educator, is a Dementia Care Practitioner, is a Qualified Dementia Care Specialist, and an Excellence in Care Specialist at the Alzheimer’s Foundation of America, as well as a Certified Trainer/Facilitator of the groundbreaking dementia care training tool, the Virtual Dementia Tour Experience She is a Certified Geriatric Care Manager who specializes in helping families with Alzheimer’s and related dementias issues. She consults with families telephonically nationwide on problems related to the Dementias. Her company, ThirdAge Services LLC, is located in Dallas, TX, and her website is www.thirdageservices.com.

As my mother’s abilities have declined, I’ve become creative in solving the daily challenges of personal hygiene.  Standing in front of the bathroom sink to brush her teeth became very difficult as my mother’s stamina weakened.  The day I had her sit in her recliner to carry out the task was a relief to us both.  I have a small table that I can place all the implements I need close by.  I lay a towel over my mother’s chest to keep her dry.  I begin the process by first using a brush pick to

Tools used to brush teeth

clean out the excess food stuck between her teeth or pocketed in her jaw. I wipe what I dig out on a paper towel.    I then put toothpaste on a soft bristle child size toothbrush.  All the while, I compliment my mom on what a good job she’s doing, that her dentist would be proud, and what we are doing next.  On most days, she will open her mouth willingly and allow me to gently brush. Next, I give her a small cup of water to swish around in her mouth, then hold up a small bowl for her to spit the contents of her mouth into.  Sometimes I have to show what I want her to do – swishing the water in my mouth and spitting it into the bowl.  I inspect our progress, then may need to use the brushpick again or brush again, and rinse.  Once satisfied that we have thoroughly cleaned everything, I give her a capful of mouthwash.  I remind her not to swallow the mouthwash but show the swishing motion with my mouth and have the bowl close by to empty her mouth.  I wipe her mouth off with the towel on her chest, then finish by applying some chapstick to moisten her lips.  She will agree that she feels better now.

If she is not willing to open her mouth at the beginning of the process, I usually move on to her hands, wiping her hands with a damp towel, cleaning her fingernails with the tool attachment to her fingernail clippers, and applying lotion to her arms and hands.  This will distract and relax her and she will usually agree to open her mouth.  Most times, I follow the teeth cleaning with the hand washing.  I also play easy listening music while we do both activities.

What once was a problematic situation such as bad breath, food stuck in her front teeth and agitation in trying to remedy that has turned into a daily intimate ritual that is satisfying to us both.

If you would like to gain insight into the available skilled care facilities (nursing homes) in the Mobile area, I suggest you google Nursing Home ratings in Mobile.  MatchNursingHomes.org is a good place to start.  They offer ratings, bed availability and pertinent information that can help you narrow down your hunt.  Once you find some interesting prospects, call and make arrangements to visit and tour the facility.