In a world of advanced directives, I have written a prayer that asks God for my long-term care.
My Prayer by Alzheimer’s Daughter
If I enter the darkness that enveloped the women in my family
before me, I ask that you would provide a good caregiver. I want
someone to care for me as a friend, and is empathetic to my plight.
I want someone who will get to know my life history and cherish
the time we spend together.
If I am lost to whom I am, I want my “friend” to tell me a story
about a little girl fondly called Buffer by her daddy, who always
cared deeply for the needs of her family. I’d like to hear about my favorite dog,
Pittman, and how devoted he was to me.
On some days, we may just live in the moment, and spend a happy
day accomplishing the menial chores that we must perform.
Grocery shopping could be an exercise in stimulating the senses,
starting by looking at the pretty pastries in the bakery, then feel the
firm tomatoes in the produce section and take in the lovely sights
of all the other garden varieties colorfully displayed. I’d want to
grind some coffee beans just for the rich scent that emanates from
the machine even though I don’t drink coffee. She’d let me push
my own buggy and be patient with me when something of interest
catches my eye. I could hold on to the buggy while bending down
to peer into the big glass doors covering the freezer sections allowing me
to exercise my limbs without the fear of falling.
When it was time to check out, I would help lift the items from the
buggy onto the conveyer belt, using my bent fingers in hopes of
relief from their constant ache.
My companion would protect me from the questioning eyes of
those who didn’t know what a special person I am. She would
lovingly put her arm around me and tell me how much she loved
me when I tried to go where I shouldn’t. She’d draw my attention
to something I couldn’t resist and I would follow her lead. We’d
move on toward the unknown together and I‘d be happy to be with
someone I could trust and who knew what to do.
The women who cared for my mother came and went. Some
would know just how to enter her world and go along with her as
they reached their daily goals of care. Others just did the
minimum of effort and sat quietly, lost in the crossword puzzle or
handheld device brought along to help pass the hours of sitting,
taking the term private duty sitter literally, as they added up their
weekly paycheck.
My dear grandmother never forgot who I was, even when she was
confined to her bed under the watchful eyes of three shifts of
women, round the clock for several years. We had spent so much
time together in her later years that the sound of my voice and the
touch of my hand on her arm brought back my name to her lips
that she was still able to say aloud. That’s the kind of care I want
to receive. From someone who will see me as I looked in the
photograph taken when I was a young, beautiful woman, full of
promise, fresh and unblemished. Not like the wrinkled, worn,
volatile creature that I now may appear to be.
I want someone who wants to be with me and thinks of things we
can do together that will cause us to laugh and smile. She will
show me, tell me, and sing with me. She will pray for me, include
me and hold my hand. She’ll read aloud short stories and bible
verses that may still be hidden in the depths of my brain. I want to
recognize something and sing that song buried beneath the noise
and confusion that predominates my consciousness.
She’ll look into my eyes and see what I see. Even if my words are
few or gone altogether, I’ll still be there, hoping for a friendly
voice, one that is full of love and compassion. She’ll give me time
to respond to her efforts and I’ll try to find my way to the surface.
She knows that I might be getting lost along the way, and it may
take me a while to begin to understand what is happening. She’ll
know that I do best when things are done consistently; her
sentences are short so I can comprehend and she’ll give me one
instruction at a time. I’ll want her to stay with me. She won’t
leave because I’m here and I’m often in a fog and can’t find my
way.
Please Lord, hear my prayer. If I begin to wander away from who
I was, please seek me out; rescue me back into the flock as you
have done before. Send a faithful servant in the form of a
caregiver to keep me safe until I am in your arms forever.
AMEN
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