AL.com blog post: Eastern Shore Walk to End Alzheimer’s

August 27, 2014 at 1:03 pm

See  AL.com press release and then read the original below.  Thanks, AL.com for getting the word out.

Check it out.

 

However, here is the complete article:IMG_6804 IMG_6807 Walk_to_End_Alzheimers

EASTERN SHORE WALK TO END ALZHEIMER’S

 

It wasn’t supposed to be this way. At the age of 84, retired nurse Peggy Sagan of Fairhope, Alabama, never imagined that she would be observing the care of her own daughter, Pat. Especially since her daughter had excelled in nursing, pursuing degree after degree to become an instructor and mentor to so many. Peggy didn’t want to believe that Pat had become the victim of early onset Alzheimer’s disease at age 50. However, with no cure in sight, Peggy does what she can. Accompanied by a faithful friend, she makes the weekly trip to Biloxi, Mississippi, to visit Pat, who lives with her husband and two sons. Pat was diagnosed with Alzheimer’s 8 years ago and now receives care from not only her husband and family members but also from hospice.

Because of the distance between Fairhope and Biloxi, Peggy can’t help her daughter as often as she’d like. Instead, she volunteers at the Adult Day Respite called Shepherd’s Place, located at the Fairhope Methodist Church. The Director of Caring Ministries of the church, Dr. Ann Pearson, established Shepherd’s Place out of her own experience of caring for her mother, who for seven years lived with Alzheimer’s disease. What started out as a two day a week respite to support caregivers in 2009 has doubled to four days a week, with 35-40 volunteers to help run the program.

The team at Shepherd’s Place is preparing for the upcoming “Eastern Shore Walk to End Alzheimer’s,” which will raise awareness of the growing population of people living with dementia. After all, 93,000 Alabamians are estimated to have Alzheimer’s. Of Americans age 65 and older, 1 in 9 has Alzheimer’s; for those age 85 and older, 1 in 3 has the disease. Another American develops Alzheimer’s disease every 67 seconds. Due to the large number of Americans suffering from this disease, purple is becoming easily recognized as the color to support Alzheimer’s disease.

The Walk is designed to raise funds to further the care, support, and research efforts of the Alzheimer’s Association. Although there is no registration fee, all walkers must register and are encouraged to make a donation to join the fight against Alzheimer’s. The event will begin at the Fairhope Pier on September 20, 2014. Registration opens at 7:30 a.m., the ceremony begins at 8:45 a.m., and is followed by a two-mile walk through Fairhope.

Shepherd’s Place will have a booth set up to display colorful art projects participants have made. Other informative booths representing resources available in our area to families living with Alzheimer’s disease will be featured. Fairhope’s own Andy Luedecke of Synergy Home Care is the force behind the Walk along with many volunteers who are dedicated to make life better for those living with Alzheimer’s disease.

 

Registered walkers will receive a “promise garden” flower in the color that best represents their connection to the disease. Peggy will be given a yellow flower as she currently supports her daughter, Pat. Ann will have a purple flower as she has lost her mother to the disease. There will be blue flowers for people living with the disease, and Andy will have an orange flower as he supports the cause and a vision of a world without Alzheimer’s.

The Alzheimer’s Association “Eastern Shore Walk To End Alzheimer’s” is promising to be an anticipated annual affair for the entire family. To be a part of this inaugural event, put on your purple attire and join in. Everyone has a reason to end Alzheimer’s.

For more information or to register online, go to act.alz.org.

Written by Alzheimer’s Association advocate, Beth Reinert, of caregiversunite.org.

Alzheimer’s is a costly, dangerous disease / AL.com

May 14, 2014 at 4:08 pm
IMG_5725
By Letters from our readers   AL.com
on April 23, 2014 at 3:17 PM, updated April 23, 2014 at 3:23 PM

Purple is the color for Alzheimer’s disease. On April 9, 2014, I joined more than 800 purple-clad advocates to speak on behalf of the over 5 million people who have AD in the United States. Our mission was to appeal to our members of Congress for action on Alzheimer’s disease.

I am among the 15.5 million unpaid caregivers whose life is radically altered by providing care for my mother and aunt. I oversee their lives daily, handle their finances and problem-solve their every challenge.

Thank you to Bradley Byrne for meeting with our delegation to discuss the Alzheimer’s crisis. It is the most expensive disease in America; nearly one in every $5 spent by Medicare is on people with Alzheimer’s or another dementia, yet there is no cure in sight.

In addition to the human toll, Alzheimer’s costs $214 billion a year. Because of our growing senior population, unless science finds a way to slow progression or delay onset, Alzheimer’s will cost an estimated $1.2 trillion by 2050. More information can be found on alz.org by accessing the 2014 Facts and Figures State Statistics Sheets.

At the recent 26th annual Alzheimer’s Association Advocacy Forum in Washington, D.C., I heard Alzheimer’s advocate Dr. Francis Collins, director of the National Institute of Health, say that we are not, at the moment, limited by ideas, scientific opportunities or by talent. He stated, “We are, unfortunately, limited by resources to be able to move this enterprise forward at the pace that it could take.”

Please understand that this disease is epidemic and could affect almost everyone. One in three seniors dies from Alzheimer’s disease. The number of people in Alabama living with the disease is projected to increase from 14 percent to 24 percent by 2050. Approximately 500,000 people die each year because they have Alzheimer’s disease.

I hope you will join us by putting on your purple and support increased funding for Alzheimer’s research by $200 million in fiscal year 2015.

It is only through adequate funding and a strong implementation of the National Plan to Address Alzheimer’s Disease that we will meet its goal of preventing and effectively treating Alzheimer’s by 2025.

Beth Reinert

South Alabama Advocate for the Alzheimer’s Association

Merry Christmas, Everyone!

December 24, 2013 at 8:00 am

IMG_4907

We wish you a merry Christmas wherever you are! May God give you the grace to enjoy precious moments by going with the flow presented today.  Smile and be thankful that you are trusted with the gift of loving someone unconditionally in your life.

Check out Caregiversunite.org on Facebook and join the conversation.

October 4, 2013 at 1:11 pm

Caregiversunite.org has it’s own Facebook page.  Visit us on Facebook for an easy conversation and the latest news.